Framework Construction and Promotion Strategies of Health Data Spaces

Corresponding author: SHEN Lining, sIn2008@hust.edu.cn

DOI: 10.12201/bmr.202503.00043

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  Abstract: Purpose/Significance The health data space is the foundation for promoting the sharing, exchange, and circulation of health medical data, as well as for cultivating the health medical data element market. Grasping the development opportunities of the health data space provides practical insights and policy references for the value release of health medical data and the high-quality development of the health medical industry. Method/Process Through literature review and policy analysis, this paper systematically reviews the progress of health data space construction at home and abroad, and constructs a framework for the health data space. It analyzes the constituent elements of the health data space, and then, based on the value co-creation flow, resource interaction flow, and trustworthy control flow, it sorts out the interaction process between health data resources and data subjects. Finally, it proposes strategies for the advancement of health data space construction. Result/Conclusion The framework coordinates the five constituent elements of the health data space: technical support, data resources, data subjects, rules and mechanisms, and application scenarios. Starting from the application scenarios, it explores the three stages of value release of health medical data. Furthermore, it comprehensively proposes strategies for the construction of the health data space in terms of improving policies and regulations, protecting privacy rights, developing data products, and enhancing health data literacy.

  Key words: health care data; data spaces; data circulation; data utilization; promotion strategies

  Submit time: 14 March 2025

  Copyright: The copyright holder for this preprint is the author/funder, who has granted biomedRxiv a license to display the preprint in perpetuity.
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